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  • Layman’s report of the international conference on MDC1A

    In the weekend from Friday the 15th to Sunday the 17th of November in 2019, we held the first international conference on the rare, inheritable muscular dystrophy MDC1A (Merosin Deficient Congenital muscular dystrophy type 1a). The Friday and Sunday of the conference were only accessible to experts. On Saturday the 16th patients, their parents and…

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  • ‘The level of commitment of these people is very high’

    Head of research of the University of Maastricht, Bert Smeets was recently interviewed in Algemeen Dagblad about the congres MDC1A The Road to therapy . Smeets, specialised in Mitochondrial dysfunction in metabolic, cardiovascular and neurological diseases, is highly impressed by the hard work and effort of Bram Verbrugge and Emine Kara. ,,The level of commitment…

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