Research updates

  • Layman’s report of the international conference on MDC1A

    In the weekend from Friday the 15th to Sunday the 17th of November in 2019, we held the first international conference on the rare, inheritable muscular dystrophy MDC1A (Merosin Deficient Congenital muscular dystrophy type 1a). The Friday and Sunday of the conference were only accessible to experts. On Saturday the 16th patients, their parents and…

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  • Collaboration Stichting Voor Sara and Maastricht University

    A key element in this endeavour is bringing all MDC1A researchers together in Maastricht in November for a 3-day conference. Bram Verbrugge, father of Sara – with MDC1A – and chair of the foundation, is one of the initiators. He knows the impact MDC1A has on a child and experiences how difficult it is to…

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