Who are the driving forces behind this website?

Dutch non-profit foundation Voor Sara promotes research into the causes and treatments of the rare muscle disease MDC1A/Lama2 CMD. For this website we work together with the Spanish patient organisation ImpulsaT, the American CureCMD and various scientists and doctors. This website is made possible thanks to the financial support of the pharmaceutical company Prothelia. Read more

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Do you have a question for one of the experts or researchers with whom we are in contact? About an investigation, a treatment method or other information that you are looking for? Submit your question and we will get you a personal answer as soon as possible. We will also publish the answer on this website.