The road to therapy

Merosine negative congenital muscular dystrophy type 1a. A terrible, rare disease, affecting children worldwide. Curable only through extensive research. Join the cause, attend the convention, or donate.


What is MDC1A exactly?

Everything we do is driven by the 600 muscles in our body. That is clear with large movements such as walking, cycling, sports. But you also need your muscles to laugh, eat and even breathe. If your muscles are weakened by muscle disease, it will affect your entire life.

Most muscle diseases are progressive. A large proportion of people end up in a wheelchair. Why it goes wrong is not always known. Thanks to scientific research, doctors can search for a solution.

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