Organisation

Making the conference possible

  • Foundation Voor Sara

    Co-initiator of the conference. Foundation Voor Sara aims for research to be done into the muscle disease MDC1A.
  • Maastricht University

    Co-initiator of the conference, led by professor Bert Smeets.
Partners

Together we can overcome this

  • RadboudUMC

    In collaboration with dr. Nicol Voermans of the Radboud UMC there will be carried out a natural history study in two congenital muscular dystrophies / myopathies. MDC1A is one of them. In addition, a Biobank of muscle stem cells will be started.
  • Stichting Zeldzame Ziekten Fonds

    The Rare Diseases Fund aims to raise money for research into rare diseases.
  • Spieren voor Spieren

    The Dutch foundation Spieren voor Spieren supported the conference with a generous donation.
  • Universiteitsfonds Limburg

    The university fund Limburg donated to the conference, which helped making the conference possible.
  • Internetbureau Elephant

    Thanks to the great team of Elephant, you are looking at an amazing website. They built it in just one day, with united powers.
Donate

Support the research for a cure and donate now!